Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Sunday, 18 September 2011

Dani's Story by Diane and Bernie Lierow with Kay West

Dani's Story is the true story of Danielle Lierow and how she came to be in a loving, caring adopted family after seven years of severe neglect. It is a harrowing tale of a girl who held on when many might have perished and was able, despite a horrific start in life, to acknowledge the possibilities of allowing in the love of a new family.

The book is written from the perspective of adoptive parents Diane and Bernie and shows their struggle to get Danielle into their home as soon as possible after learning about her start in life. They never imagined when they first looked into adopting that they would take in a special needs child but fell in love with Danielle and knew that she needed them as much as they needed her. It would be an adjustment for all involved and would take longer than any of them realised, with some massive roadblocks along the way.

I was fascinated by this book before I had even read it, after reading that the diagnosis of Danielle's "condition" after being removed from her birth mother was that of Environmental Autism. Basically, it seemed that Danielle was born completely fine, but the neglect she suffered from a young age and the severe lack of love, care and encouragement she encountered meant that she had gone into herself, never spoke and acted the way a baby does. She made noises, grunts and repetitive sounds, she walked on her tip-toes, drank from a sippy cup, shovelled food in her mouth so fast it often made her sick and still wore a nappy. So when the Lierows were told the full extent of her life so far, nobody could say for sure whether she would improve or stay the same for the rest of her life.

CWLA

The brilliance of this book is its honesty. At no point do you get the impression that the Lierows are saints or annoying do-gooders who blow their own trumpet. They are a close-knit family comprised of children from each parent's previous marriage and Willie, the one child the two of them share. They live in a close-knit community, close to their pastor and a couple of elderly couples nearby who are like surrogate grandparents. They do not see Danielle as a project, merely another member of their family. They keep eight year old Willie constantly in the loop to make sure he will be OK with the transition.

And what a transition it is... For prospective adoptive parents, they also go into laborious detail about each step of the process and how after all the time and effort they have put into becoming potential adoptive parents for Danielle, they then have to apply for a Foster licence too. The red tape gets so much, you can see how so many people would give up on the process. But despite knock-back after knock-back, the Lierows are a determined bunch and you feel their frustrations and pleasures so keenly as the process drags on and on.

I work with special needs children and was touched by the way the books describes the "little victories". When an Autistic child manages to get one word out, you want to grab them and hug them and tell them how amazing they are. The Lierows have this appreciation of Danielle. They take their victories where they can and realise how lucky she is and they are compared to the many children and families with far more severe disabilities.
Dellinger
Then Dani's story really takes off when a local reporter asks to cover their story, which gets a massive response from people all over the world... especially when the story is picked up by Oprah!

It's not always an easy read, but is helped by the fact that you know Danielle is now adopted by the Lierows so there is a certain "happy ending" to her tale. This doesn't lessen the frustrations, the horror and the fear at all, it simply drives you on to see how they managed to pull it off.

Dani's Story is a gripping, heartwarming and horrifying non-fiction must-read.

4/5 FOBLES

Click here for an extract on the Penguin website.

Thursday, 3 February 2011

Top Perspective-Altering Must Reads

This week, the fab people at Chance for Autism (@ChanceForAutismpulled off a great eye-opening and fun day with the help of the lovely Gizzi Erskine and Scott Mills among others. Their aim? To prove that Autistic people are not useless, that they have something to offer the world and can be valuable employees.


This caught my attention because I work with many Autistic children but sadly these children are at the other end of the Autistic spectrum and employment for them is not really a possibility. But there is something they could use - understanding. I have lost count of the number of times I have received stares and judgemental looks from passers by when we take the kids out for trips and I realise that it comes from a total lack of understanding of what Autism is. Ignorance - in this instance - is not bliss!


And it made me realise that before I worked with these children, I was exactly the same. I didn't know a thing about Autism because I had never needed to. And then I read The Curious Incident of the Dog in the Night Time by Mark Haddon and my perspective on Autism and Asbergers was transformed. Its genius is that it is still fiction. The plot is entirely made up, but brilliantly written by Haddon from the perspective of a young boy with Aspergers Syndrome. By exploring the world through his eyes, the reader is forced to see what he endures, how society treats him and how his mind works.  It really is a book that everyone needs to read at some point in their life - and the sooner the better.



Here are my top books that have altered my perspective:
  1. The Curious Incident of the Dog in the Night Time by Mark Haddon
  2. To Kill a Mockingbird by Harper Lee - arguably started the idea that a book written from the child's perspective offers a naive but pure and innocent view on society. Deals beautifully with the civil rights issues in America where blacks were considered lesser citizens.
  3. The Boy in the Striped Pyjamas by John Boyne - once again explores the horror of Nazi Germany and the Holocaust through the eyes of a young German boy who doesn't really understand what is happening. Gripping from start to finish. Absolutely brilliant.
  4. Freedom Writers - For a non-fiction book, the honesty of the class in their entries is mind blowing. Very courageous and admirable stuff. Brings positivity out of an otherwise bleak situation.
So take a look at life from a different perspective and see what you think.


As always - enjoy! :)


LE xx

5/5